The Sick Days: Part 11
It was the Last Drink on the Table
The rush of daily journalism faces off against the need for a daily dose of prednisone as a cub reporter tries to make it from the all-male east bureau to the doors of One Yonge
By Shelley Page
A tip came in that had front-page potential, handled right.
I begged the bureau chief—who held a scrap of paper covered in sketchy details as if it was a treasure map—to let me check it out.
It was my first week as a full-time reporter at the Toronto Star and I needed something out of the ordinary.
As I raced down Brimley Rd. towards the Scarborough Bluffs, the steering wheel of the 1978 blue and white ‘Star car,’ quivered like I was pushing a power mower. I had to keep pulling to the left to keep it heading straight, straight toward the lake.
The tipster, Bill Shillabeer, waited at Bluffers Park, a sandy beach beneath the towering bluffs.
“Where is it?” I asked, breathlessly. A reporter must strike a balance between ...
The Sick Days: Part 10
A serving of self-loathing, with a dollop of death wish
An autoimmune diagnosis suggests something self-inflicted, and the fact that the 80 per cent of the 50 million American sufferers are women fuels the idea that there is a substantial psychological component. Forty-five percent of women suffering autoimmune disease were first labeled hypochondriacs.
By Shelley Page
Before I knew I was the proud owner of an immune system that couldn’t tell self from invader, doctors pushed sedatives on me.
They hypothesized that my buffet of bodily dysfunctions — stabbing pain around my lungs, clawed hands, ruddy and hot joints — were provoked by overwork and exams, stress or anxiety. Something of my doing, or my response to something of my doing.
Then I found out I had an autoimmune disease. And if we’re going to get all psychological about it, it’s like having the mutant spawn of Hannibal Lecter, the self-cannibal of all illnesses. We sufferers allegedly have an acute ...
Obscure illness gets star treatment
Thanks to Selena Gomez's recent revelation that she suffers from Lupus, the world knows a lot more about an illness that once stood like a wallflower at the high school dance of diseases
By Shelley Page
The world’s teenage girls just got a crash course on lupus.
Selena Gomez has 34 million Twitter followers, 47 million Instagram followers and 58 million Facebook followers.
And she has lupus.
Suddenly, the obscure has become front-page tabloid fodder.
I feel horrible for her, but oddly happy for those of us who suffer from the fatigue-inducing, organ-destroying autoimmune disease.
October is one of those months when there are walks and talks for many major diseases. October is Autism Awareness Month. Ditto for Brain Tumor Awareness, Breast Cancer Awareness, Eye Health, Learning Disabilities, Psoriasis Awareness, SIDS Awareness.
And Lupus Awareness Month, at least in Canada.
It’s an obscure illness that doesn’t attract big banks as sponsors or celebrities ...
The Sick Days: Part 9
The press was powerful and intoxicating
Printing secret crushes fills a last-minute news hole, and opens a young reporter's eyes to the power of shared community a newspaper can cultivate
By Shelley Page
After the latest issue of Monty’s Mouth was distributed, our junior high school’s collective of burnouts, jocks and nerds would spend five minutes smelling the paper it was printed on, hoping for a high off the pungent smelling mix of isopropanol and methanol — the duplicating fluid used in the ditto machine. This was the era when cooking sprays like Pam were huffed out of plastic bags and kids hung out near the pump while their dad filled the gas tank.
Working for Monty’s Mouth was like school-sanctioned substance abuse.
But I was drawn to the paper because of the intimacy it created. I liked when kids gathered to read about wrestling wins, near perfect foul shot percentages, out-of-town band trips, and overwrought student poetry that sometimes had to be ...
The Sick Days Part 5
Prednisone 101: What the doctors didn't tell me
15 prednisone-fuelled moments from journalism school
By Shelley Page
1. I’d only been back in Ottawa a few days and my face was like a pregnant woman’s belly. People couldn’t keep their hands away.
Walking with a purposeful bounce across the Bank Street bridge, I waved at an approaching classmate. She looked at me oddly and didn’t wave back. By the time we were face-to-face, she leaned in, squinted, and then gently poked my face with her finger.
“Shelley? What’s the matter with your face?” she squealed. “Are you sick? Did you have your wisdom teeth out?”
I imagined my neo-cherubic cheeks popping, squirting prednisone juice all over her.
Others simply didn’t recognize me. While sitting in a campus pub, I noticed my former roommate Jen waiting tables. I prepared to launch into my brief explanation that I was on a medication called prednisone and it caused Fat Face. But she served me hot chocolate and ...
The Sick Days – Part 4
Getting the scoop of my life
The rheumatologist increases the dose of prednisone to 80 mg, enough to medicate an asthmatic elephant, but fails to mention the life-expectancy side of a lupus diagnosis
By Shelley Page
This is how the cover-up began.
I showed up for my summer newspaper internship, signed some papers, found a desk, took an assignment, only cried in the bathroom.
And after writing 1,000 words for a sidebar on a school board matter that should have been just 400—the Province is a tabloid–I slipped out to await my mother, driving up Granville Street in her Ford Pinto.
That first week, and many after, my mom spent three hours each day as a chauffeur driving to and from the Province. She deserved a medal for driving; me, for acting.
I didn’t tell anybody, editor or the veteran journalists sitting on either side of me, that I’d just been tentatively diagnosed with a serious autoimmune disease.
Operating instructions, please
The truth is, I had ...
The Sick Days: Part 3
Who's afraid of the wolf?
An aspiring reporter gets her first shot at daily journalism, along with a diagnosis that demands a daily dose of prednisone
By Shelley Page
If home is where the heart is, what about the hurt?
Would it follow me there, too?
Upon my return from university, I sat in my straight jacket of pain watching my parents take action.
My dad pulled out the plaid sofa bed in the basement so I could sleep upright by leaning on the back of the couch. He moved the TV close, pushed the shuffleboard out of the way.
My mom brought me warm towels to pack around my chest. When that didn’t ease the hurt, she wrapped her arms around me, trying to minimize the ripping pain that came with each breath.
They’d booked me an appointment for the following day with our family doctor, but I was without hope. After five doctors and 18 months, I already viewed the medical profession with doubt and disappointment.
But as I unspooled my story to our GP, he didn’t ...
